Alexandra or another Rett: Cruise vacations

Friday, February 24, 2012

Cruise vacations

I just went on cruise for 4 days in Mexico. It was the seventy birthday of my grand mother Jennifer. My ant Shannon helped me fligh with my sisters and my two cousins to LA , where I took place on the Carnival cruise. My dad met us there and more ants and uncles.It was a big party. You can see me all excited in the arms of my daddy. Next to him in black my sister Gabrielle, and my grand mother is the one looking down behind my sister. I am back home now, to Sandpoint with my mom who missed me very much.

No comments:

Post a Comment

Who I am

My name is Alexandra, I was born the 11th of December 1999 in Idaho. I was diagnosed with Rett syndrome in 2002 by the Baylor Laboratory , who found a mutation in my MECP2 gene. From that time life has been somewhat challenging, especially in the beginning. Everything was so new to us all, that we felt in and out of chaos and "normal" life...My wise sister Gabrielle stated to my parents at the age of 5: " What do you worry about...she is just making us stronger!" And she was right, my mom call me her master teacher. My life has changed a lot in the past 11 years, my family got used by my manifestations and I am slowly getting out of my own chaos. I am getting acclimated with my sensations and perceptions and can enjoy life in a more consistent way. My mom and I are excited by the exceptional possibilities of expressions this blog is allowing us to share. PS :( my wise sister is now a teen and if my parents worry , I wish they can remember her wise words " she is just making us stronger...! " :)