Alexandra or another Rett: My caregivers

Monday, November 14, 2011

My caregivers

I have three caregivers right now, Cindy, Janeen and Jennifer. They are so good to me. They come to my house after school for three hours to take care of my needs and Jennifer keeps me longer sometime during a week-end. . They play with me, read to me, take me out for a walk or a visit to the library...they are so much help to my family. Thank you caregivers, you are the best.
My mom had a hard time asking for help at the beginning ( when I was three), but now she know that she can't do it all by herself, and that i need a court of lady's around me at all time.

1 comment:

Beacon of HopeNovember 14, 2011 at 10:04 AM
ahhhhh......it is a pleasure to spend time with Alexandra! And, with her lovely family :) See you later today :) Cindy <3
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Who I am

My name is Alexandra, I was born the 11th of December 1999 in Idaho. I was diagnosed with Rett syndrome in 2002 by the Baylor Laboratory , who found a mutation in my MECP2 gene. From that time life has been somewhat challenging, especially in the beginning. Everything was so new to us all, that we felt in and out of chaos and "normal" life...My wise sister Gabrielle stated to my parents at the age of 5: " What do you worry about...she is just making us stronger!" And she was right, my mom call me her master teacher. My life has changed a lot in the past 11 years, my family got used by my manifestations and I am slowly getting out of my own chaos. I am getting acclimated with my sensations and perceptions and can enjoy life in a more consistent way. My mom and I are excited by the exceptional possibilities of expressions this blog is allowing us to share. PS :( my wise sister is now a teen and if my parents worry , I wish they can remember her wise words " she is just making us stronger...! " :)