Halloween 2012

Alexandra was in a good mood, took a bath than dress up. Watch Alice in Wonderland ate and went to bed. Sweet little Swiss girl. 

Blood test and All

We got some blood test done to see how Alexandra was doing on her vitamins, blood level and food allergies. Nothing came out , she is in excellent health, except a low level on Vitamine D who is typical in North Idaho. I also got a hair test with toxins and minerals level. Again Alexandra do not show anything major, and no contamination of heavy metals. 

        Alexandra had anyway a hard summer and I am trying to know what is going on. I have been giving her an antioxidant as a supplement with herbs. I started in June and just stopped two weeks ago. She is actually better now, so maybe  the supplement was triggering to much stuff in her. She appear to be back to her true self. All of this made me think that her digestive system is very important to her well being, so I have decide to keep track in a weekly book of her bowel movement and her seizures if any. I recommend anyone to do the same, because I think we forgot when was last they has a BM, and the child can be intoxicated and in pain very easily. 

       I also have decide to give her enzymes for digestion, and probiotic  for her flora. She is also taking one cap of Fish Oil/ day. So hopeful our little Alexandra is going to be better, ready to learn again and happy. 

Mural at SMS

Mural I made for Alexandra new school at Sandpoint Middle School . Was a lot of fun  and a nice addition to the class. 

Horseback Riding

                                         

Alexandra start horse therapy when she was three years old... it went one and off for some years, but the club had to finally close.  I think that horses are great therapy for Rett girls, along with warm pool. So this summer I decided to found a person with horses to have Alexandra ride. We went once a week and drove a hours to this wonderful family who own the best of horses I have ever met. Alexandra ride only for 10 MN to 20 MN  than the horse is free around us when she get her snack we stay for a hour altogether. . It been so beautiful to see her, incredibly comfortable on top of a very tall horse, smiling at the world from her sitting place. ....

The sessions will end soon, the weather do not allow horse back riding in North Idaho......until next probably summer. Thank you to Angela and her family and horses. 

So long ago...

Sorry we have not been present at all with our blog! Summer was busy and Alexandra was not at her top. School just started and I am trying to figure things out for Alexandra to feel better. 

We are doing blood test and hair test to see if she is allergic to something or  having a to high or to low level on her vitamins and minerals . .... I feel like something is wrong with her digestive system, not totally new, but it is maybe  time to found out more. Will let you know. These little girls suffer allot from they belly and I think that doctors should be more concerned. 

This picture of Alexandra was taken during a summer day for the Children Cancer Hospital in Spokane , where we all went to volunteer with face paintings.  My friend Marie Dominque Verdier took the picture. http://mdvphoto.com/    

Well again

I am so happy to see Alexandra back to herself again! Eight weeks have past where she had somber into a autistic state , where she was not accessible, not really connecting to anything. These states happen every once and a while and can last for weeks. They are hard time, our daughter seems all together in pain, disconnected to the world, or just able to pay attention for very little time. They are dreadful time, when no therapy and even good living attitude will do. They are time when I give allot of bath to Alex and  when I try to be present  for devoted care for a child in difficulties. ...! During those time I try my best to understand that they will pass and that for now I should just be supportive to what is. Therapy do not work during those time, I am glad that we had nothing on schedule, but therapy at home that I didn't reinforced. 

Welcome back Alexandra,  maybe you have changed and grown...? 

Up and down of my Rett life

Life with a Rett girl is like a trip on a roller coaster ( something i have never sign up for and never experienced) but it is an expression who fit them well.  Alexandra mood  has been improving with the years passing...we also got used to her, but still every day bring something quiet different. When  they are down the roller coaster it is a panic in all the hearts of the Rett's parents! 

These specials beings ask for allot of attention, without they seems to wilt like a flower without water...